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Magnate
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Join Date: May 2007
Posts: 2,049
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Magnate
Join Date: May 2007
Posts: 2,049
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I'm with Glenn on this one, that temperature threshold test is not even being used much anymore. I do believe folks in Australia are at a disadvantage as there is no place doing skin biopsies. I do remember that post that soon a laser procedure that sounds similar to a pulse ox will be available to check for small fiber neuropathy. I do not remember who posted that, was it Dahlek??? I don't think it will be available for a few years.
I believe in the US, the procedure that was used, prior to skin biopsy was sural nerve biopsy. I don't see many folks from Australia having that procedure done either. ???
I would check into the suggestion Cathie made. The only definite way to get a diagnosis of SFN right now is skin biopsy or sural nerve biopsy. I do not know the logistics of sending the tissue to a lab elsewhere to be read, especially across borders. You can make a trip here, hey the dollar has never been lower, we are a cheap 'vacation' destination.
Some other testing in the autonomic realm, imply small fiber neuropathy, but, even with those being abnormal on me, they still did skin biopsies....and eventually that muscle biopsy.
Perhaps you can start putting pressure on your health care system to offer this test?
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