Member
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Join Date: Jan 2008
Location: Los Gatos, CA
Posts: 187
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Member
Join Date: Jan 2008
Location: Los Gatos, CA
Posts: 187
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IVSM on a regular time schedule???
Anyone do a one day round of IVSM or Solumedrol Smoothie on a regular time schedule?
I'm still interested in Tysabri, but because of logistics, it probably won't happen for at least 6 months or so (local oncology hospital has ridiculously restrictive hours - my medical practice is finally touch certified but in the process of retrofitting a building for their own Ty infusion center).
Going to Copaxone from Rebif has increased my MTBF (that's "mean time between failure") from three months to 6 months...but I want more than that.
My neuro thinks that in the short term, a preventative round of solumdrol every three months might fend off the exacerbations. The idea of taking steroids so often doesn't sound great, but then again...if it worked it would only be 4 grams of solumdrol in one year, as opposed to 3 grams every 6 months which equals 6 grams in one year.
In one year (assuming it worked) I'd actually be consuming 2 grams less solumedrol.
Key words ..."Assumming it worked".
Has it worked for anyone else??
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~Victorya~
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Spring 2002/present - Double Vision
Feb./Dec. 2004 - Optic Neuritis
Dec. 17,2004 - Diagnosed RRMS
Feb. 9, 2005 - First Rebif injection
Mar. 7, 2006 - "Copaxonator"
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