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Old 02-29-2008, 02:28 PM
dahlek dahlek is offline
Magnate
 
Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
15 yr Member
dahlek dahlek is offline
Magnate
 
Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
15 yr Member
Default I have to ask????

There have to be other indications? I mean, a doc would NOT have done the biopsy w/o other factors pointing to justifying a biopsy being done?
Going Down Liza Janes' lists?
Nerve Conduction Studies, and Velocity Studies?
Immune blood and spinal work?
MRI's and CT's????
Spinal Testings
Cardiac tests and monitors
Sonos of leg vascular issues?
Bloodworks?
Glucose Testings?
IF all THESE were absolutely negative...I'd find a doc hard put to justify the billing to an insurance company...get my drift? There has GOT to be something in your records that said: DO THIS TEST....and you have to get copies of your records to find out for yourself.
And NO! I am not a doc, BUT I did get copies of my records and saw things there that the docs did NOT! And after a couple of years of trying, I'm still bugging them about this # and that #...I call it working out the 'bugs'. One bug at a time. And, a couple of my 'bugs' have turned out to be right. Sigh.
First you have to find [HOPE for all here!] a neuro you can communicate with, trust and think actually listens to you. Then you have to BUILD that relationship with the worst/key/primary issues/concerns. Then address the details bit by bit each visit. It takes quite a while. BUT keepat it and each issue will get it's time.
Michele? I have to believe that you probably have more things going on than the shooting/burning pains in the feet! I know as I've had them, now things are down after years to a 'being under a high-tension-wire' HUMM. It's enough thank you!

I do hope that both Glenntaj and BobB will respond to the whole small-fibre issue more articulately than I have done. I've both small and big. [Sigh again?] To me, they are the smartest experts in this quarter that I know!

's - j
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