Quote:
Originally Posted by dahlek
There have to be other indications? I mean, a doc would NOT have done the biopsy w/o other factors pointing to justifying a biopsy being done?
Going Down Liza Janes' lists?
Nerve Conduction Studies, and Velocity Studies?
Immune blood and spinal work?
MRI's and CT's????
Spinal Testings
Cardiac tests and monitors
Sonos of leg vascular issues?
Bloodworks?
Glucose Testings?
IF all THESE were absolutely negative...I'd find a doc hard put to justify the billing to an insurance company...get my drift? There has GOT to be something in your records that said: DO THIS TEST....and you have to get copies of your records to find out for yourself.
And NO! I am not a doc, BUT I did get copies of my records and saw things there that the docs did NOT! And after a couple of years of trying, I'm still bugging them about this # and that #...I call it working out the 'bugs'. One bug at a time. And, a couple of my 'bugs' have turned out to be right. Sigh.
First you have to find [HOPE for all here!] a neuro you can communicate with, trust and think actually listens to you. Then you have to BUILD that relationship with the worst/key/primary issues/concerns. Then address the details bit by bit each visit. It takes quite a while. BUT keepat it and each issue will get it's time.
Michele? I have to believe that you probably have more things going on than the shooting/burning pains in the feet! I know as I've had them, now things are down after years to a 'being under a high-tension-wire' HUMM. It's enough thank you!
I do hope that both Glenntaj and BobB will respond to the whole small-fibre issue more articulately than I have done. I've both small and big. [Sigh again?] To me, they are the smartest experts in this quarter that I know!
 's - j |
This is what happened to me. Last Summer my new kitty cat scratched me on the top of my foot. About a week went by and it was very sore and hurt to walk on my foot. I went to the doctor and they lanced it. Not much puss came out of the sore, however 2 days later I could not walk on my feet. They both hurt like hell.
I went to my pcp and he said he didn't know what was wrong with my feet and why they are hurting. Meanwhile I am bawling my head off because it hurt. He said to me if you still hurt in a week come back and I'll give you a referal to a neurologist. I told him no, I need one now. In the meantime he gave me pain medicine to hold me over until I could see the neuro.
About 1 week later with this foot pain, my back went out. Now it was very difficult to walk because the feet and the back was hurting bad. I saw a pain specialist and he blocked a nerve, but that only lasted 12 hours of relief so that didn't work.
I had an MRI done of my neck & spine. In the meantime I am waiting for my neuro appt. So from the time the pain started I got to see the neuro about 5 weeks later. He did the nerve test. I am not sure what the name was. But, he put the needles and it would shock my muscles. He sais he got a little bit of nerve damage so he wanted me to get a punch biopsy done. I told him I had diabetes for about 10 years, didn't get serious with the disease until last year....... when I got my results back he said I got the neuropathy from my diabates.
My new neurologist just gave me a MRI of the spine, did some blood work, sending me to a gastro doctor because of my diareaha that I have had for 3 weeks and the wierd feeling I am feeling in my abdominal wal. I am also having sharp burning pains that are now shooting through my back, legs and arms, oh yea also my butt. Also going to find out if I have sleep apnea. But I don't have any tingiling, or numbness... just the burning sharp pain. Does this mean these things will come later? If I could have the numbness then the pain would go away, would that be right? This pain is the worst that I have ever felt and I can't stand it!!
Michele