Hi,
Still a newbie here, looking for straight, honest answers even if they hurt about my 23 yr old son. He was born at 26 weeks with Hydrocephalus, CP, and brain injury. Lately, unexplainable low body temps ALL the time. 94-96 are the readings for the last 2 weeks. Dr's sometimes seem to sidestep our questions, maybe to not worry us. As the years pass, with all the shunt failures, CT scans, and shunt series X-rays, we are told of "Loss of Gray Matter" progression and "Stiffness" inside his brain. He seems to be slowly losing ground. Over the last 2 weeks his Psyc has been trying to wean him off Paxil and then start him on Effexor. He was taking 50mg Paxil per day, gaining lots of weight. Doc reduced Paxil to 25mg per day and he came unglued. Crying, headaches, vomiting and just ill. Wife feared this was shunt failure again so we have gone for another CT and Xrays. Because of our concern the tests were looked at quickly and we were told the only significant change from last tests was loss of gray matter. An honest answer please, will this just keep getting worse with time and make him more disabled? Anyone else walked in our shoes? Thanks for any input.