Quote:
Originally Posted by HaveaHeart
Hello! I am new here, and just diagnosed after about a month and some change of misleading "thoughts" from other doctor/dentist.
Went for a 2nd opinion to a new doctor - who is now my hero. He diagnosed me within MINUTES. It was amazing. Granted, I did have a complete "history" of what Id been going through, how long my "attacks" I called them lasted, where I was experiencing them, how often in a day they came, what brought them on, etc.
OK so........
I am being treated with Tegretol 200mg twice a day. The past 2 nights have been really really bad for me. Ive barely slept. My pain seems to be worse when I lay down. I can lay for about 5 minutes, and the pain starts. Same with a recliner or "overstuffed chair" - about the only thing I can do is, sit in a straight back chair (dining chair) or stand up. Not that it goes away completely, but so much less intense, and less often.
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I'm new as well. I had undiagnosed TN for three years. Didn't experience significant problems when lying down though. Started on 200mgs of tegretol a year ago and have had to increase since then to 600mgs per day.
Have you tried an increased dosage?
Stewart-tn