In Remembrance
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Join Date: Aug 2006
Location: Florida
Posts: 3,904
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In Remembrance
Join Date: Aug 2006
Location: Florida
Posts: 3,904
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They should be able to report Phase i, within the press release, in layman's terms. Doesn't have to be complete. ]
Here's what I am getting at Carolyn. We are challenging the placebo effect to a certain extent. I think it's a great idea to raise money this way; but it's not good enough to ask because it's promising and will be doubled.
This is a discussion with the intent to cause even more of the kinds of changes we have been asking for.
can't take it personally , altho i don't know how you are supposed to disassociate it......just know that my intent is..if they want people to give money, they need to show the givers the beef.
paula
adding:
still thinking as usual.....I'd be willing to raise a thousand dollars, which would become 2,000, if we can be briefed about all things that can be made public and provided with an explanation for requests denied. Reasonable - not defensive - in the spirit of can we do this? If patients can't handle hearing about adverse events, then perhaps a trial to this extent isn't right for them. let's get REAL.
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paula
"Time is not neutral for those who have pd or for those who will get it."
Last edited by paula_w; 03-02-2008 at 10:47 PM.
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