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Old 03-04-2008, 08:27 AM
Dana Reese Dana Reese is offline
New Member
 
Join Date: Mar 2008
Posts: 1
15 yr Member
Dana Reese Dana Reese is offline
New Member
 
Join Date: Mar 2008
Posts: 1
15 yr Member
Default 8 yr old with Chiari

Hello, My son Stuart was dianosed last year with Chiari 1 after an MRI was taken after a first time seisure. The neurosurgeon (pediatric) refered us to a pediatric neurosurgeon here in Atlanta. We based the first visit on the first MRI. Stuart has shown no symptoms of Chiari. The doc. suggested Stuart have another MRI (more advanced) to see further down the spine to lock for any pockets( I think called syrinx) that can form on the spine and cause a lot of problems. The advanced MRI looked great. We could see the Chiari (very tight) but the spinal fluid was moving great, there were no syrinx formed, and no symptoms. The doc. gave his opinion that we hold off on the surgery because everything looked great and Stuart felt fine. One thing Stuart has had in the past was sleep apnea bu we think was corrected with tonsilectomy. The Doc suggested we have another sleep study in a few months and another MRI in a year. The sleep study came back fine and the MRI is scheduled for June. Last we Stuart had a fall at school sitting on a railing. He fell backward and hit his held. Hew was sore on the top of his head. He seemed fine, but the next day we got a call from school. He was complaining that his "hands were asleep) We rushed to the school to take him for a CT and xrays. That all came back fine. We made followup visit to the neurosergeon to be checked out Wednesday. The feeling came back first in his right hand and then his left. He is fine now. And I have calmed down some! I'm very worried. We think his MRI will be moved up. I know this was long but I wanted to give you the whole story. (by the way the seisure was not related to the chiari... the chiari was just an iccidental finding) Also, by the way the neuroligist daughter (13) has chiari and has had a sucessful surgery. Dana
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