Hi,

I'm not sure if this is the right or the safest place to share this but I'm am very overwhelmed and bewildered by the things that have transpired today.

i have had a puzzling array of symptoms since I was 16 years old (I am 24 now). Fun things like severe muscle weakness, severe doubble vision with drooping eyelids, fatigue, weakest in the morning and late at night, limb weakness (esp in the legs and feet) balance issues, things like that which come and go like the wind and seem to have no rhyme or reason. I'm am scared out of my mind right now b/c I just had a single fiber emg to "rule in MG" and it did the exact opposite. MG/neuromuscular disorders were effectively ruled OUT today after a year of taking medicine for and thinking I have myasthenia then i suddenly find out that i do not have MG and my little world was turned upside down!!!!

It started with doubble vision and 25 prisim dopters of prism in my glasses then eye surgery then MG diagnosis now that has been retracted and more diagnostic tests are being run and I am so scared!!! and upset b/c I want so desperately to live a normal life and now it feels like life is over (at least a full normal life of the kind that i want to led). I wanted the MG to be ruled out but at the same time i wanted nothing else to be ruled in!

i am so overwhelmed right now. Has any one else out there ever been through what I'm going through right now? how did you handle it.

I am still waiting for the results as the SFEMG test was just today but when i started thinking back on the past week when i have been off the mestinon it has been so rough. i know mestinon is not too effective for MS (and my neuro told me DO NOT go back on the mestinion) but for some odd reason it helped slightly that is until the side effects took over! this past year has been a physical nightmare with the physcial decompensation of things like muscluar control, and thigns like that. i used to play several sports and be so active, but now I can't do so many things that i used to love and even things that i once took for granted like walking accross a room easily. that is a huge task now frought with grabbing walls and furnature and other things like that which are so humiliating. It has about driven me up the wall today to know that everything is up in the air and that i have a lot more diagnostic tests comming up. we have to travel 2.5 hours to see my neuro and it is just really hard. any encouragment and insight would be greatly appreciated.

sincerely bobcat (Rachael)