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Member
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Join Date: Sep 2006
Location: Tennessee
Posts: 518
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Member
Join Date: Sep 2006
Location: Tennessee
Posts: 518
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Littlewish, just be glad the doctors are giving you a diagnosis. MG is such an individual disease, and run of the mill neurologists are so uneducated about it, that many MGers go for years without a diagnosis.
What you have descirbed sounds to me like MG. Droopy eyes, swallowing problems, positive Tensilon. Accept it and get on with the job of learning to live with it. What meds have they decided to put you on?
I take only Mestinon, 60 mg every 3 to 4 hours. I also need Synthroid for an underactive thyroid. I used to have Graves' Disease, and had a thyroidectomy and removal of a goiter, and after many years, now have underactive thyroid.
By the way, we MGers now have our own Myasthenia Gravis forum. Feel free to post there.
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Lois .
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