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Member
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Join Date: Jan 2008
Location: Milwaukee WI
Posts: 245
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Member
Join Date: Jan 2008
Location: Milwaukee WI
Posts: 245
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Hello and Oh Happy Daze~!!
I am going for my 2nd sleep study tonight, but this time will have the CPAP on in order to regulate how I will use it. Next I see this neuro to get my RX for it AND talk to him about what my Rheumy thinks it wrong.
The Rheumy does think these "episodes" I get are autonomic dysfunction, EXACTLY what I told my MS neuro's nurse last November when she called. She told the MS neuro called back and said he didnt think so.
Autonomic dysfuncton is a problem that can come from having lesions with MS. Hmmm...
BUT the other neuro thinks its Narcolepsy with cataplexy. I just dont buy it. My "episodes" aren't sudden nor do I ever sleep. I do get very weak but then my heart/bp and oxygen levels are going wild. I LOOK unconscious but can HEAR it all!! THATS why the Neuro thinks its cataplexy.
The diagnoistic train moves on... and on.... I am ok though. BUT I notice I stop breathing a lot during the day... so.. who knows?
Hope you all are improving, gettin relief or finding answeris..
Brain... how's your pain level?? relief yet?
luv you all ~!
Warmly Jan
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