Mrs V,
Welcome to Neurotalk and I am glad that you have found us. I see that you already have the link to the ALS forum. Some very informative posts there.
I would also recommend to keep an eye on the PD forum as sometimes there is information there about treatments that might also have benefit for ALS patients like stem cell treatments. Here is the link.
http://neurotalk.psychcentral.com/forum34.html
Please let us know if we can help you in anyway as you navigate around the forum