Quote:
Originally Posted by Dana Reese
(by the way the seisure was not related to the chiari... the chiari was just an iccidental finding) Also, by the way the neuroligist daughter (13) has chiari and has had a sucessful surgery. Dana
|
Hey, Dana.
Do you know for sure that the nsg you saw knows about Chiari? A lot of nsgs don't know enough about it to give informed opinions. It's very possible, even without syrinx and with free CSF circulation, that the sz could be related. I would seek another opinion just to be sure. Check out the following sites for referrals:
www.WACMA.com
www.ASAP.org
www.chiarione.org
www.conquerchiari.org
Good luck!
LIZARD