Quote:
Originally Posted by Koala77
Cherie I totally agree with you on this. Has no-one heard of anaphylaxis (as in cardiac arrest) from drug reactions?
All I can say is listen to your body. It's best to take heed now while adverse symptoms are not severe, rather than have them build up to a full blown anaphylactic reaction.
Please don't become a statistic barb. Please listen to what your body and your doctor have to say.
I'm sorry that what I'm saying is probably not what you want to hear, but some-one has to be the big bad wolf and tell it like it is.
I'm not a horrid person barb. I'm saying this because I care!
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"I am already a statistic
" I do not think you are a horrid person. But I also plan to listen to my doctor rather than pay any attention to advice from individuals who perhaps do not have any experience with tysabri. I am not taking this drug blindly. I am aware of the possible problems and continuously weigh the pros and cons. I may have to quit taking it. Based on the research I have done, it is not that unusual for individuals to experience some side effects or reactions particularly in the first 6 months. Or it may be a sign that I have developed antibodies to the med. I have also had experienced an allergic reaction to interferons and had too many IPIR's while on copaxone. I would rather have a reaction in the doctor's office then at home alone. That being said, I would obviously rather have no problems at all. If I have to stop taking tysabri I am out of options other than the possiblity of getting into a study where I may be taking a placebo.