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Old 03-07-2008, 05:43 PM
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sassy sassy is offline
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Join Date: May 2007
Location: Michigan
Posts: 681
15 yr Member
sassy sassy is offline
Member
sassy's Avatar
 
Join Date: May 2007
Location: Michigan
Posts: 681
15 yr Member
Heart

Today is better. I'd say I was 75% my norm, whatever my norm is. LOL

PCP didn't have much to say except MS is one big MyStery! So, that is now a medical term!

She is having me have my phosphorus level checked next week and see if it is back to normal. The deficiency is so rare it wasn't on her handheld computer, go figure. Leave it to me to be weirder than normal.

Also looking at a result on my last MRI that said "there is a developmental venous anomaly present with the right basal ganglia region draining to the basal forebrain area". She found something that said "in this system, it is apparent that small disturbances can throw the whole system out of whack, often in unpredictable ways. One of those ways is difficulty with intended movement". She is sending info to neuro and getting her slant on this. The way she talked this is one of the Parkinson's symptoms but usually in a smaller way. She said maybe I had a total misfire in that area.

Maybe that could explain why I was rigid but unable to make my limbs, muscles etc move.

I really doubt I will ever have any real answers.

She is a sweetheart and always gives each patient plenty of time and not afraid to say I just don't know.

I'm actually going to try to go to a MS program that I helped plan tomorrow. Beth (bannet) is going too if she is feeling better! I hope so!

Thanks again for all your prayers! God bless you all.
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If someone listens, or stretches out a hand, or whispers a kind word of encouragement, or attempts to understand a lonely person, extraordinary things begin to happen. --Loretta Girzaitis
Trust that your abilities are stronger than your disabilities - Maxene Kupperman-Guinals
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"Thanks for this!" says:
Bannet (03-07-2008), FinLady (03-07-2008), MSCherokee (03-07-2008), SandyC (03-07-2008)