Hi Jenno,

I would love to talk with you more about your daughters symptoms, etc. Jesse has constant stomach pains with the burning sensation and stabbing. His pain is a constant 7 but with episodes of 10. He is also nauseous, has headaches, body aches, and constant fatigue. Does this sound similar to how your daughter felt?

We struggle to get him to school everyday - it's very hard. He would like to be homeschooled, but I want him to be with his friends and to keep getting up and out for the day. I feel like the meanest mother in the world.

I'm not sure how the physical therapy is going to work. I would like to learn more about the oxygen treatments. Where was your daughter treated? We live in the Philadelphia area, but are willing to travel anywhere to get him help.

I would appreciate any advice you have to offer. Thank you for your support. I hope your daughter continues to be well.

terry