Keri

These are the kinds of situations that I brought up at the recent RiskMAP review of the TOUCH program. This is exactly what is NOT supposed to be happening anymore...I am furious for YOU...

I am going to copy your post and forward it to Biogen. To the person who is in charge of this program. You are NOT an isolated case.

You bet you should call the hospital. They cannot possibly be full. Call the infusion center, they also cannot possibly be full. The TOUCH people are not helping you, they are getting in YOUR way.

This is a system that is supposed to run smoothly and in your case it is obviously NOT...they - all of the - are adding stress to YOU and that is not what needs to be happening. The comment from your docs office was totally uncalled for. He's busy and sees a lot of patients? Geez, she needs a little course in how to talk to patients.

I am so sorry for what you have gone through. It is totally unnecessary.

The washout period as defined by Biogen/Elan is 2 weeks, not a month. Sounds like your neuro is being overly cautious, but maybe that's because he has so many patients.

Take care Keri and keep us posted.