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Old 03-08-2008, 02:56 PM
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Riverwild Riverwild is offline
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Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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Thanks for jumping in here Cheryl! Your help is appreciated yet again!

I had hoped that MSActivesource had ironed out the wrinkles since I started. I remember what I went through with them when I first started, and after three weeks they hadn't done a damned thing. The garbage about the paperwork that was sitting right in front of them, their little cheerful welcome call when I made the girl cry, the "oh yeah, didn't anyone call you yet about that?" etc.

This whole program doesn't seem to have improved. Too many people are getting the run around. Incorrect information gets passed out as fact. No investigation is done on coverage and co-pay. Faxes are lost. Med doesn't come. There's a different answer every time a new person signs up.

I am willing to do whatever I have to, to get this crap straightened out. If phone calls, letters or standing out front with a sign will work, please give me some input.

I'm putting together a timeline on what I have been through, between no information being available, different person every time I call, etc. My side of the ballgame is on top of everything. Infusion center faxes the stuff in front of me, Dr. signs and faxes in front of me, I get a copy with the time of the fax right on it, yet Biogen says again...we didn't get the fax...my pharmacist at the hospital keeps an extra vial on hand now because they can't get their thumb out of their backside long enough to fax the specialty pharmacy on time!!

It's gone on too long!
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
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Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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"Thanks for this!" says:
tovaxin_lab_rat (03-08-2008)