View Single Post
Old 03-10-2008, 12:08 AM
Peter B Peter B is offline
Member
 
Join Date: Jan 2008
Location: Perth, Western Australia
Posts: 376
15 yr Member
Peter B Peter B is offline
Member
 
Join Date: Jan 2008
Location: Perth, Western Australia
Posts: 376
15 yr Member
Default

Quote:
Originally Posted by dllfo View Post
My fog too. I can be talking to someone and the phone might ring, then I have already forgotten what I was talking about.

If I am supposed to do something, I HAVE to write it down.

My wife drives me crazy by picking up my pill container and "putting it away". THEN she asks if I have taken my pills and I tell her I am not sure. At that point I look for my usual places and if they are not there I have to ask her where she is hiding my pills. It sounds dumb to most people, but I hope you understand. My wife does not seem to be able to follow.

I kept a log of all opiates for over 500 days, until I felt like I had a handle on it. Now I take all my meds and put all 7 days in at one time. I am on Avinza and Oxycodone and Lido-Derm Pain Patches.

I am 62 and have been on opiates for around 2 years. I fear early onset of Dementia. I already am disabled for inoperable lower back damage and life threatening respiratory disease. If I pass out or don't use my ventilator, I will not start breathing again. CCHS is what I have. Since birth. Of course they did not "find" CCHS until around 1962.

My Dad developed Dementia at around 80 years old. He was NEVER on opiates.

I am working to get off them completely, but I fear the stress of the pain will just come back twice as bad. Hard to know what is "right".

Good luck with your treatments.
Hi dllfo. You certainly have it tough.
As regards your expressed desire to get off opiates, is that because of side effects or a fear of physical or psychological addiction?
If that is the case, have a look at this article.
http://www.thepainweb.com/doclib/topics/000006.htm

It may be that opiates are your best medication, and any fears of dependency are irrelevant, so to speak.
Peter B is offline   Reply With QuoteReply With Quote