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Magnate
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Join Date: May 2007
Location: Heah!
Posts: 2,921
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Magnate
Join Date: May 2007
Location: Heah!
Posts: 2,921
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Quote:
Originally Posted by RedPenguins
River - are you currently taking Tysabri? brain! How's the tys going for you? what # are you on?
Some of my updates are on this post. I go for infusion # 12 the 27th of this month. No problems, no concerns, no side effects, just an EXCELLENT 6 month MRI and vision test!
When you said that you went in front of the FDA to testify - it was to have Tys re-released, right?
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I personally did not travel to testify at the FDA hearings when Tysabri was returned to market. My comments were mailed along with hundreds of others from MS patients all over the USA. My personal involvement continues to be behind the scenes. Av8rgirl testified in person at the hearing and she continues to advocate for Tysabri users at the government level. She can fill you in more on her unique situation.
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?
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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!
diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
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Negative for JC virus antibodies!
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I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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