One of my neuros once tried me on Dexamethasone, which is something like Prednisone, and I had a terrible reaction to it. It made the MG worse to the point of putting me in intensive care. My breathing just totally tanked. Of course, not all MGers get such a bad reaction, but it's not unusual for the MG to initially get worse. In the short time I was on Dexamethasone, I had just about every side effect known to man. I really sympathize with your desire to get off the Pred. I remember when he was weaning me off the Dex, I had 2 "episodes" when I couldn't raise my hand without looking at it to get the visual clue of which way was up. It was crazy and scary! If someone came at me now with a corticosteroid, I think I'd run like mad in the opposite dirrection.
Feel free to PM me any time you want!!