Hello eveyone here - I just posted up on the PN board in more detail but thought I should also post here and greet you all.

My name is Lucy, I am 36 and live in London, UK. I have had sensory, numbness problems (one thigh, then both so diagnosed with MP... but now hands too so not MP anymore!) that have got progressively worse since I was 15. I am still undiagnosed... although currently I am told not MS or HNPP so the search goes on (and is pretty hard to do here with British health system).

After living in fear of all the things it could be, and without any support, for so long, last summer I decided to tackle it and really get to the root of what's going on... which has eventually brought me here.

I am really looking forward to catching up on all your old posts and reading your new ones!