I don't see how this would hurt someone's feelings, but my apologies Julie, if it did.

Virtually every day can be H#(( with this disease, especially after having it many years. It is part and parcel of what we live with.

We do have to tune it out . . . or at least I do. If we focus on every twinge or obstacle, it makes life miserable for ourselves and everyone involved.

Julie struggles a lot . . . we all do. I am not denying her pain or frustration, I am just trying to suggest ways to cope. "Coping mechanisms" are what we all have to learn, and one of those is to try our best to ignore some of these problems, when possible. The more we talk about it, the more we perpetuate the gloom and obsession with it. This is my personal experience, and a lesson I had to learn too.

Obviously not everyone is going to agree with this approach, but it is my opinion on the matter, and it does work for me most of the time. Not always though, obviously, or I wouldn't have listed out all my current grief.

I get mad too. Mad at this disease, mad that everyone suffers so much (especially me ), and mad that I can't do anything about it. I get frustrated when I can't walk or talk or live . . . Dwelling on each problem is depressing though, and not at all healthy for me.

However, I am sorry if my anger about MY DAY, MY LIFE, trying hard to KEEP MY AGONY TO MYSELF (so as not to bring down everyone else) has spilled over into this response.

Cherie