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Magnate
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Join Date: Nov 2006
Posts: 2,088
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Magnate
Join Date: Nov 2006
Posts: 2,088
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Hi
Mike and Mark, thanks for the great words of support. We all are here for each other and we are all blessed to have each other through this. I have a lot of family and friend support and my Dr. has been at my side for 17 years now so he has been a Godsend and so was Bill.
I think Mike gets more what I am saying though. We see these Movie Stars with MS, Jerry Lewis doing the MD telethon, Michael J. Fox with Parkinson's which my Mom and Dad both had, Cancer, Diabetes, they are always on the top of the research list. These are the older diseases and it seems to me that the newer ones are just being left by the wayside.
I too have seen way too many Drs. to talk about. The Pain Drs. I had like Mark were saying seemed to know less then we do by learning off of the computer. I would actually hear of a medication on here and mention to my PCP and he would let me try it. He researched and has stood by me when Pain Drs. just want to hand me a bunch of drugs and say, we're done. I think they are too passive about these chronic pains. I think too there are so many people coming up with them that they decided it was just too common and too many with them so they run the patients through like cattle and really try to do nothing major for them.
As far as meds, how many have come out for the nerve pain. This Lyrica I believe will come down to being the next Vioxx/ Celebrex rerun. Lawsuits galore. A person gains 30 lbs. from it and has a heart attack or develops diabetes, all of the other side effects it's putting out there. I'm amazed that they are saying it's the first one for Fibro when Fibro has been know now for years since at least the early 80's that people started getting diagnosed with it.
The only other things we hear are the Ketamine treatments which now have been decided they might be bad. HBOT also.
How many med are around for High Blood Pressure, depression and so on compared to these few things for these illnesses.
I do know we all have each other and I see people on here struggling all of the time but it bothers me that nothing seems to be getting done for them.
As far as Drs. Their oath is First Do No Harm, well first you got to do something to inflict harm. LOL I wonder if it really means in Laymen's terms Just live with it. That way they do no harm.
Girls, I wanted to say thanks for the your thoughts too. We seem to notice it or have a harder time dealing with it at times then the men, at least it seems that way to me. Bill never complained up until the end so I know they seem to be able to deal with pain more.
This is me on my soapbox.
Ada
Last edited by dreambeliever128; 03-13-2008 at 02:58 PM.
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