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Old 03-13-2008, 08:47 PM
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MelodyL MelodyL is offline
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Join Date: Aug 2006
Posts: 8,292
15 yr Member
MelodyL MelodyL is offline
Wise Elder
MelodyL's Avatar
 
Join Date: Aug 2006
Posts: 8,292
15 yr Member
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Thanks to all of you who responded.

I do have a question that is not neuropathy related but is auto-immune related.

Alan has had psoriasis for many many years. On his elbows, behind his ears (these have gone away), but the elbows and ankle, (the right foot which is the foot where he had his operation). In the past, whenever he has had IVIG, the psoriasis would flare up.

Or when he has had surgery (like the stent, or the tailor bunion), the psoriasis would flare up. We've tried all the creams, etc. (his insurance won't cover the oral meds, and I don't think he would go that route anyway).

Actually, it comes and goes. BUT!!! on his right ankle, this is where he has this HUGE psoriasis patch (don't know any other way to describe it). It's a good 5 inch patch full of scales). He would scratch it and the scales would come off. Been doing this for years. Usually at night I'd remind him, and he would rub on sime Vitamin C and E lotion. (he's used the psoriasis cremes and stuff but they don't work).

The Vitamin A D AND E (it looks like vaseline) stuff just moisturizes his ankles and dissolves the scales.

WELL!!! (and sorry if this is graphic but I have to put this question out there), today, at Beth Israel, the orthopedic surgeon unwrapped his leg (it's been about 3 weeks since his surgery).

He came home and said "my incision is healing nicely". So I didn't look at the leg. Well, just now I walked into the living room and on the little table by him were this bunch of stuff that I thought were orange peels. I said "what on earth is that". and he said "my psoriasis". I said "your what??" and he said "I've been wrapped up for 3 weeks, do you know how much scaling I've accumulated?, you know that after a surgery, I always have a psoriasis flare-up!!!" I could not believe what he took off of his ankle.

I took a look and said 'holy moly" It looks exactly like a snake that shed his skin. He has very thin skin anyway.

There was the BIG 5 inch thing that was red and raw looking, and two other patches. Of course I quickly cleaned up everything, got out the Vitamin A D and E ointment and went to town putting it all over his leg. Not by his incision, but where he has had the patches. On his elbows too.

It just melts the scales and it either comes back or smooths away. Like behind his ears. Most of that is gone. I have no idea why this happens to him.

His toes are psoriatic (that's what his podiatrist has said). Nothing Alan can do about that. He just takes care of them as best he can.

But the thing on his leg. I never knew that being wrapped up for 3 weeks, well, that I would see ALL THE STUFF on the table. It was like flake flake flakes, all over the place. And all over my couch. I mean ALL over. Got it all cleaned up. He had an IVIG treatment on the 7th.

It's like his skin is shedding. By tomorrow, the raw stuff on the ankle will have calmed down. This has always happened. Sometimes, one of the psoriasis cremes we have used, well, it will work. But that ankle patch, well, it just is what it is. Long long time now. He doesn't seem to care about it. I believe he is just used to having psoriasis.

Do any of you have experience with the scales accumulating after a surgery?.Or after an IVIG treatment? He wasn't able to unwrap his leg for 3 weeks, and these scales really accumulated. I really never expected to see such accumulation like I did.

I know that it's just a bunch of cells but Holy Cow!!!
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