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Old 03-13-2008, 11:58 PM
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BEGLET BEGLET is offline
In Memorium
 
Join Date: Sep 2006
Location: So Cali
Posts: 661
15 yr Member
BEGLET BEGLET is offline
In Memorium
BEGLET's Avatar
 
Join Date: Sep 2006
Location: So Cali
Posts: 661
15 yr Member
Default Billye

Billye, sorry you are feeling bad again... I know Dahlek and others have a number of sites - here's a couple of them....

http://www.sos.se/Smkh/2006-110-4/2006-110-4.htm
http://www.emedicine.com/neuro/topic467.htm


I think most people show autoimmune markers in spinal fluid, ANA bloodwork, etc... as well as the type of damage that is shown by NCS/EMG - also onset I belive is important....

For my diagnosis - I did not show autoimmune markers but onset was immdiately after a respiratory infection - (onset after an infection or bout with a virus etc is typical), literally waking up one morning with a completely numb hand and foot, and quickly progressed from there with stumbling and falling, weakness, etc, and confirmed by NCS/EMG and sural nerve biopsy that showed demylination and degeneration, axonal and severe nerve fiber loss.....

I'm sure you'll get lots more sites tomorrow - maybe glance at the CIDP forum too?????

Hang in there
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