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Old 03-14-2008, 09:03 PM
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Jan4you Jan4you is offline
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Join Date: Jan 2008
Location: Milwaukee WI
Posts: 245
15 yr Member
Jan4you Jan4you is offline
Member
Jan4you's Avatar
 
Join Date: Jan 2008
Location: Milwaukee WI
Posts: 245
15 yr Member
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Well, first of all let me say how sorry I am for anything you are going through and hope you get relief and soon.

But just recently I mentioned that to my Neuro and he had me see another neuro in his office who specializes in seizures and sleep disorders. The inside of my head would shake too whenever I was falling asleep or when I was already asleep.

So he does another EEG it was ok. Did a sleep study and yes, I have a mild case of sleep apnea BUT...what he really thinks its part of narcolepsy. Seems when we dont sleep well enough at night, or..when we dont get enough oxygen, we "Make up" for it by taking moments during the day or micro sleeping which looks like we're dazing off. I will see him next week to verify his thoughts as a possible DX.

ASK your doc, just in case you are having a lack of oxygen or any other kind of symptoms. My MS neuro missed this for years.

Good luck, let us know!!

Jan
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