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Old 03-15-2008, 03:32 PM
slskckjebw slskckjebw is offline
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Join Date: Jan 2008
Posts: 195
15 yr Member
slskckjebw slskckjebw is offline
Member
 
Join Date: Jan 2008
Posts: 195
15 yr Member
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I have had lack of sensation. I can not call it complete numbness, but probably close. I also have bladder problems. Mine is also external.

Mine comes and goes. I have paid close attention wondering if it was cycle related and it is not. I have had times when touch is very unpleasent, painful, sometimes it feels like I am being stuck with a pin cushion.

I have noticed it does seem to go along with the times I am having more trouble with sensations in other areas of my body. I know hormones can cause problems, but mine are ok.

MS is affecting my vision and lower body. Seems like it is related, but I don't know for sure. I am also interested in hearing what others with MS have to say.


LA


Quote:
Originally Posted by lady_express_44 View Post
I know this could be an awkward discussion topic, but I am struggling with it and hoping to learn some tricks of the trade, so to speak.

Are there many here who have experienced complete numbness in the nether region? Did you recover eventually?

In about 4 of my spinal lesion attacks, I have become completely numb down below, with extreme sensitivity to touch. The amazing part is if I can get past the pain and other unpleasant sensations (sometimes you just gotta', if even just for your partner), I do ultimately "finish". However, even that sensation is not all that pleasant either.

In my most recent attack, I was numb just to the pubic area, but not internally. This was more tolerable, but still not very pleasurable.

I know this can be a very long-term problem too, not just lasting several months as it has each time for me (so far). Has anyone ended up in that situation, and do you have some coping strategies, ie. in a relationship, you probably can't just say "no more, ever".

I imagine this can be a problem for men too, and even though they can use viagra, isn't it painful?

There other things just as important with intimacy, but when you are numb and hurting everywhere, I find any "closeness" very uncomfortable.

Any ideas or thoughts?

Cherie
__________________
LA
Optic neuritis May 2007 and again January2008
Diagnosed February 13 2008
Started Avonex February 22 2008 (still progressing)
July 2009 started Betaseron.....

"Don't argue with an idiot. People watching may not be able to tell the difference."
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