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Member
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Join Date: Jan 2008
Location: Milwaukee WI
Posts: 245
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Member
Join Date: Jan 2008
Location: Milwaukee WI
Posts: 245
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Thanks Craig and Cherie for helping me out.
I have had 2 Rheumies after the MS doc and his PA before that thought that my "newest" symptom, this terrible pain about the size of a quarter in my upper arm was Fibromyalgia.
By the time they checked me I had all the pressure points for Fibro.. so I took myself to a Rheumy. Yes EVERYTHING else was ruled out by MS doc and by this Rheumy except for HLA-B27. My labs didnt match up for my other symptoms of very dry eyes and mouth. But she gave me Rx eye drops, a GREAT pill that creates saliva ( a life saver) and 2 auto immune fighting drugs. One was too severe, Methotrexate, but stayed on Rx Plaquenil.
Rheymy no 1 leaves her practice, so Rhuemy no 2 who says my labs dont fit her DX of differential Sjogren's, a mimic of MS. AND it causes lesions. i have plenty of lesions.
So he takes me off the meds and my muscles ae now worse. i have Baclofen and Lyrica which I take for spasticity and spasms in my back but try to take it ONLY at night. I need to be as alert as possible for job. My MS neuro WILL treat symptoms .. he's just not sure if I still have a mild case of MS.
Now I think the meds the 1st Rheumy had me on was helping my muscle pain.
Oh well, who the heck knows. ITs prob the Fibro AND spasticity...tho BOTH Rheumies didnt think I had that.
WHat an absolute guessing game!!! So much for my 2008 goal of eliminating as many docs as I can and their meds if possible
Thanks tho
Jan
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