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Old 03-17-2008, 09:58 PM
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LizaJane LizaJane is offline
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Join Date: Aug 2006
Location: Brooklyn, NY
Posts: 805
15 yr Member
LizaJane LizaJane is offline
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LizaJane's Avatar
 
Join Date: Aug 2006
Location: Brooklyn, NY
Posts: 805
15 yr Member
Default Drop attacks

This worries me. It's something people get with autonomic neuropathy--SEVERE autonomic neuropathy, when their nerve (usually vagus nerve) just stop giving signals to blood vessels to keep blood pressure up, and heart to be pumping at a good clip. So your brain doesn't get enough blood and you pass out. But it's not good for the heart either, and sometimes this kind of problem is associated with other organ problems. Does your neuro know about this?????

Please call you neuro and tell him; if he's as good as you say, I'm sure he'll see you earlier than the next scheduled appointment, or at least talk with you onthe phone. I'm assuming these drop attacks are new, and he doesn't know about them.

Clearly this is a flare, but I don't know of what; I've not heard of CIDP causing such autonomic neuropathy, always thought severe autonomic was usually inherited.

But if you're having a flare of CIDP, perhaps you would get more or earlier IVIG.

Do call him.

Also, if you've been diagnosed with CIDP, I'd bet you've had a spinal tap, and that you had no oligoclonal bands or high IgG synthesis, the abnormalities found in MS. Is that correct? Though drop attacks don't sound like an MS sort of thing.

Please call your doctor.
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--- LYME neuropathy diagnosed in 2009; considered "idiopathic" neuropathy 1996 - 2009
---s/p laminectomy and fusion L3/4/5 Feb 2006 for a synovial spinal cyst
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