Originally Posted by Erin524

If you can find a doctor that's not going to just blow you off the second you mention the words "lyme disease", see what kind of opinion you can get on that, but I think the first thing you need to do is go see a Neuro-Opthalmologist. If there is a neurological problem with your eyes, no matter what the cause, and you dont trust the regular opthalmologist, then you need to see the neuro-optho for a second opinion.

You never ever ever ever mess with your eyes. You only get two, and if you lose those, you dont get seconds. Get your eyes looked at first.

I've got my own suspicions about Lyme disease and my health...I've generally accepted my MS diagnosis, but still have the lingering questions about Lyme since I've got a history of tick bites, and least one of two of them associated with a rash, but I cant get any doctors to take me seriously, and my insurance wont pay for any more Lyme tests, so I have to pay for any further testing for that out of pocket. Most doctors have no clue about Lyme disease and will only follow what the CDC says to do...and the tests the CDC says they have to do are not very reliable at all.

Whatever you do, dont tell any doctors that you were told by someone who is not a doctor to go look for a LLMD (Lyme Literate Medical Doctor) because LLMD isnt an actual term for a doctor who knows about Lyme. It's an internet term...if you even mention that you've researched it on the internet, any infectious disease doctor will figure that you're a hypochondriac and will not take you very seriously.

Get an appointment with a Neuro-opthalmologist before you do anything, you need to make sure there's nothing wrong with your eyes first. A Neuro-opth has other tests that they'll do.