Long lost update

I had my second infusion on March 6th. This time I had to go to the infusion center at the hospital. I seem to be in the 5% of people, who have adverse reactions, but I saw my Neuro today and he wants me to stay on the Tysabri. He said that sometimes it’s takes 6 months to see results and last time I was on, (which seems like forever) I read all your great posts. I’m still hoping! I have just felt really bad, fatigue is killing me. The headache wasn’t as bad the second time. They gave me 25mg of Benedryl thru the IV and started the infusion 10 minutes later. Sure enough, I start coughing and itching so badly they said they were going to put a seat belt on me. So they stop and call my doctor and he said 25mg more of Benedryl. He told them to keep me there and let me sleep it off. LOL, I must have been wired up, I just couldn’t fall asleep although my eyes felt like they had weights on them. I really hope my body gets used to the Tysabri.

He put me on Zanaflex today, increased my Dexedrine and Lorcet. Every time I ask him a question or anything, he says oh you’re just progressing or gives me another pill. Sometimes I really feel I need to check out another Neuro. I’m almost scared to say anything.

I’ve not been on the site in quite a while. Does anyone feel if they stay away from “MS Stuff”, that MS will go away! Go ahead feel free to tell me I’m nuts. Or maybe not think about it all the time.

I still have very high hopes for Tysabri. I am so thankful this isn’t weekly like Avonex!!! My skin would fall off from scratching!! I hope everyone is doing great and look forward to reading all the updates. I saw the trouble someone was having with MSActiveSource, or TOUCH. I called them right after my first infusion with a question. Never heard a word back, then I get a letter from them Saturday, welcoming me to the program?!?!?!? And the Avonex people called me the other day checking on me. I used to complain about them calling me constantly when on Avonex, I will never complain again!

Sorry sooooo long!