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Old 03-20-2008, 06:03 AM
lucy101 lucy101 is offline
Junior Member
 
Join Date: Mar 2008
Posts: 12
15 yr Member
lucy101 lucy101 is offline
Junior Member
 
Join Date: Mar 2008
Posts: 12
15 yr Member
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Hi there - and thanks for your reply - He doesn't think I actually have leprosy... he was said that because he couldn't work out what it was.

Thanks for the info. about the biopsy... he seemed very sure that he could tell from the nerve conduction tests that I didn't have axonal damage... guess I was fobbed off again.

He told me I definitely don't have CMT of HNPP... or any genetic disorder or the nerve conduction tests would have not have been normal... so he won't put me forward for the genetic testing.

I have a feeling that he is just leaving me in the 'idiopathic' group... I just want to check all the tests he has done agains LilzaJanes charts and with another neuro so I can find out what exaclty has been ruled out.
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