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Old 03-21-2008, 06:12 PM
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Jan4you Jan4you is offline
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Join Date: Jan 2008
Location: Milwaukee WI
Posts: 245
15 yr Member
Jan4you Jan4you is offline
Member
Jan4you's Avatar
 
Join Date: Jan 2008
Location: Milwaukee WI
Posts: 245
15 yr Member
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Hey Brain, I saw the 2nd neuro who gave me the RX for my CPAP. He will not DX narcolepsy/with cataplexy unless I continue those "episodes" after 6 months at least on the CPAP. Then he orders that daytime sleep study where you nap for them to see if you fall into REM sleep.

Oh, he wants to do an EMG test because I mentioned that my arms sometimes go numb when I am sleeping at times. HE wants to rule out Carpal tunnel.

I DONT WANT AN EMG!!! I had one mucho years ago and it showed nothing. SHould i have one? I have buzzing but what would it help by having one?

OK the RN finds the letter from the 2nd Rheumy that suggests it may be autonomic problems that cause those "episodes" I have had the last 16 years.
But the neuro didnt seem to address it. Well.. perhaps the fact its may be an autonomic problem is somewhere down the line as HE knows I need to BREATHE better first. Oxygen..rather a necessity, right? lol

He DID say he doesn't think its MS after I mentioned that I am in limbo with MS. BUT he never knew any of my symptoms or history. OK ok.. I'll go along with this program and stay with my nutritionist who I swear wil always find something to treat as I am always in the "Red zone" in his evals.

Stay tuned... thanks for asking
Jan
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