your most recent comments. Because:
1 -You are one who is well established here and many 'senior' members know you and know and respect your pain, what you have to deal with and how gracefully you appear to deal with it here in public. Newcomers do NOT know you tho and maybe a new update/intro by you could put your views into perspective. We seem to have many, many new folks in the last few months!
2- That Most forms of PN are 'CHRONIC' would that it were not. In that light tho, there are many physicians who state flatly...'You have PN-LIVE WITH IT!' -when it could be something much more as in my case and that of others here. At times, such medical lassitude can result in total disability or life-threatening issues. I can and do get a bit strident about such lassitudeinousness [is that a word?-well, you know what I mean!]
3- Yes at times, the whole 'My pain is worse than your pain' thing does come out. I certainly hope I've only rarely stated how bad that my own pain has been at times - I try hard not to be a 'lightening rod' for comparisions, as I feel that the pain for each of us has no comparisons...if there were? There would be pain STANDARDS...and the medical world is very, very far from that!
4- Taking the Pain issue a step further? Does not each and every one of us NOT feel a modicum of something more than Anger and Fear about having this pain? The whole WHY ME? and How much worse can it get? thing is constantly hanging over many, my own self included. Luck of the draw-in my estimation. But, the anger IS there and it's safer to vent it here than say, on family!
We all want this ALL to simply go away! We get conflicting input as to IF or when it might go away if ever. I do not know about you, but by the time I was ultimately diagnosed- damage, most likely permanent was done. Treatments only mediated the progressions and pains I currently had at that initial time. My doctors prevaricated as to whether it would be permanent or not. The absoluteness of some and the well, wishy-washy-ness of others certainly gave ME the impression that improvements would be minimal and likely permanent - and, that things would most likely get seriously worse in 'time'. Thanks to you and many others here I learned that ABSOLUTE was not necessarily a word that had to be accepted?
To look for, but not expect improvements, and 'stability' CAN be considered an improvement, is a good thing.
I agree with you that all here should read about the experiences of those who have other 'Chronic Pain' neuro conditions. From ALS, to MS to Chronic Pains to Fibro to TM...we all can learn from each other and gain knowledge and strength! We all have issues that 'mimic' each other soo well. To not learn from all is foolish. To not try to learn from others is downright stupid.
I truly hope that you would share more of your own wisdom and insights as to how best to live with all of this 'Stuff'!!!
As for any 'tips' working or not? Well, try it or not. I don't know about anyone else, but some things are worth a shot... The list of 'things' to try can get very long?
Please post more often, you are valuable to this 'community' even tho you don't know it! 's - j