Member
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Join Date: Sep 2006
Location: New York
Posts: 461
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Member
Join Date: Sep 2006
Location: New York
Posts: 461
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i absolutely agree with you that no one should accept its PN, live with it. There are many things that should be checked out before we accept that there is no know cause. Serious illnesses that can cause PN should be tested for and ruled out. It really aggravates me when i read of doctors who after a pin test or emg say that there is nothing you can do, meanwhile they may be living with cancer, diabetes, vasculitis etc. I have certainly felt anger and fear. PN is a very scary proposition especially in the beginning when you dont know what is going on and what can happen and if it is progressing rapidly. I can imagine what people with small fiber neuropathy feel when they have rapid progression throughout their bodies in a matter of days or even hours. I would be scared to death.
Being around death and ive been around plenty of it, never bothered me because they are then beyond all suffering. Its suffering people that I wish I could help or do more for. The recent message i put up here was to try to help the people who are suffering every day of their lives here by letting them know that no one is trying to hurt them further if something is put out there to read. I am very cognizant of the suffering of many people here and i i know it sounds trite but i wish that i could help them to live pain free lives but thats not possible with the current state of medical science. I do not want to make anyones life worse and i try not to.
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