Hi,

A person with CMT should never take a mega dose of Vitamin C. Some do thinking that it will help them.

There are three High Dose Ascorbic Acid trials going on in the United States. They are at Wayne State University, Detroit, MI, University of Rochester, Rochester, NY, and Johns Hopkins University, Baltimore, MD

There was/is strict criteria for these trials. For example, you could not have been taking very large doses of Vitamin C for a year or more, you had to be confirmed as type 1A as that is what these trials are for. And there is much more criteria as well. Some patients were/are being given a placebo and the others the Vitamin C. They do not know what they are getting.

I have heard that in other places, the patients seemed to stay where they were with their symptoms but as soon as they were off the doses, they went back to like you hadn't taken it at all. Others didn't do the same.

At any rate, it would be nice to find a cure/treatment but it appears to be a long way off. Dr. Shy did mention perhaps in 10 years I believe. At least our children/grandchildren might benefit one day. But, CMT is so very complicated. Thankfully though, there is much research of all kinds being done.

Thank you for your information.

Kitt