Hope this makes sense as my brain is scrambled at the moment. Am tired in pain and really fed up.

When I sit upright and rest arms out in front on a table my arms become more painful, colder(like ice blocks) and the colour changes are quite spectacular. I need to try and rest them in front on cushions (bead filled) but even so they feel so heavy and painful all the time.

I presume this is pressure related, though I do not lean on them , that is not good at all). Just do not know what position if any will help. It is like the more upright the more "traction"related pain I get. My neck does not feel like it wants to support my head and I never seem to look like my head is held in vertical alignment, Tried a collar once but that made matters worse, particularly as have those pressure/fulness sensations around my throat. I would love to lie flat as am sure that would help but cannot due to breathing issues.

Any advice. I know this is something we have had big posts on before about getting comy, but wondered what else have anyone tried?

Love Hx