Cycleops & Tony,
I'm sorry you're going thru ........well...what you're going thru, lately.
I've had a 'touch' myself lately, but I'm not as severe.....yet!
This thread has gone thru a good bit of philosophical attitudes-
Cycleops (thanks for the PM's), this is one I can relate to:

"I will keep plugging on, until plugging on is ALL I am doing....when that is my only preoccupation, staying alive, to the neglect of all other things, then forget it....that is not giving up, that is being reasonable in my book of rules....that is my decision. When my disease adjusted dreams, are clearly not adjustable to any lesser extent, or modifiable to my satisfaction, and I can't find a good reason to get out of bed and face big pain and major bodily dysfunction...well, that is life not worth living...and I would decline intervention to prolong life.

If they can't control my pain and I can't eat normally, poop without major procedures, or stand up for very long without passing out...well, I will have my mind made up."
My thoughts, put better than I could have.

All of us posting here are well aware of each other's problems, from reading each other's posts. New thoughts and ideas are emerging on a post-by-post basis.
But in general, aren't we 'preaching to the choir'?
Venting to each other helps, griping out loud definitely helps, because no one else really, and truly understands what we are going thru- not even most of the docs.
But that's why this forum is so necessary.
It (and OBT, way-back-when) has been a lifeline for me for almost 10 years now. I do think that it helps, as a daily dose of xtra med, to make me feel just a 'tad' better, even when I'm feeling at my worst (or somewhere in between). I do know that communicating with others here, has affected my treatment, outlook, choice of medications & supplements, and daily regimen.(And that really saying a lot for the knowledge and experience with PN, that the forum members have been so graciously willing to share).
I'm rambling, again (so what else is new?)
Suffice it to say that I think this thread is of great importance, that I am grateful for the forum and the members who have helped me, and wish we had more understanding docs and better treatments....if a cure can't be found.....yet!
(I just wish it would be in my lifetime, and all of ours as well....... but I ain't got a whole lot of years left.)