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Senior Member
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Join Date: Jan 2008
Location: Former Midwesterner now retired in Arizona
Posts: 1,009
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Senior Member
Join Date: Jan 2008
Location: Former Midwesterner now retired in Arizona
Posts: 1,009
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Been there; Done that!! 
One Neuro said there's nothing wrong with you. Another said stay off the internet. When I mentioned symptoms of MS he said one said you don't want MS because the only treatment is worse than the disease.
My last Neuro was just staring at me as if I was wacko! He just kept me medicated and not trying to find out the reason for my symptoms just treated them and not me. As I was leaving his office I asked for a final bill to be sent and I finally found a Neuro who listened.
She looked at ALL my MRI films and went over them with DH and I and read other reports. She finally said since all your spinal taps (5) didn't show anything I can't diagnose MS even though you fit the criteria.
She did diagnose me with CIS (Clinically Isolated Symptoms) which is a pre cursor for MS. At last a diagnosis! It took about 10 years several Doctors and seven Neuros to get an answer.
People in "limbo" know how it is because all we ask for is an answer and if the Doctor doesn't know they should say so and refer to someone who can help.
I have my answer. I feel better knowing.
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Brain damaged and I have MRI's to prove it!!
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