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Member
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Join Date: Sep 2006
Posts: 782
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Member
Join Date: Sep 2006
Posts: 782
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That's fascinating, Rick!
Many people with the LRRK2 mutation start out with foot dystonia.
Lindy, I have foot dystonia at rest and it worsens with walking. My foot turned inward, toes curled, and I had spasms in my feet and my leg. The dystonia got my knee out of whack and I had awful knee pain (I have arthritis with bone spurs).
Baclofen, 10 mg three times a day, is my life saver. Most of the disabling dystonia is gone. I still have it sometimes, but it's uncomfortable, not unbearable. And my knees are okay, as long as I take the NSAID etodolac.
Maybe ask your neuro about baclofen. It's very good for foot dystonia.
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