dear parkies w/ dystonia.
I believe you may need to drink some mineraled water - w/ electrolytes
- it may be helped a bit by sinemet - but in the long run - sinemet uses alot of the potassium in our bodies - so our imput minerals are running low...
when you get the horridly painful spasms - two things try to find a way to distract and a way to breathe deeply -
hold the foot - rub your foot or- hold it in place or kneel as if in prayer - holding the foot down differently.
while I am in the position I do go ahead and turn it into a bit different position - head over knees leaning on the floor - blood will go to the brain
and breathe - somewhat like the fetal position yet on the knees, if you have soft music - let it play in your home - try to get as much sunlight throughout the day - sit by a sunny window...
if possible when the dystonic episode is over -sleep
we need to sleep more between 10 pm and 2am -that is when we have the deepest -health repairing sleep called / REM sleep...
think peaceful thoughts as much as possible /
talk to friends ... some way I believe we have trained the neuropathways for
the path of different fears -once you start down the pain path the mind will take you to the path
train your minds neuropathways to take you to a peaceful place instead.