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In Remembrance
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Join Date: Aug 2006
Posts: 3,772
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In Remembrance
Join Date: Aug 2006
Posts: 3,772
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for starters
Ideally, it would require a single telephone call. I would be both distraught and confused and not up to dealing with multiple sources. So, a central coordinating office would be my first priority. From there, everything from government agencies to charities to church groups to individual volunteers could be dispatched.
And since the Net has become such a lifeline, a geek brigade would be a high priority. If my PC went up in flames it would be great to have a used replacement waiting along with a local website. And maybe the local cable company could be persuaded to donate a connection - tax deductible, of course.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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