Quote:
Originally Posted by rumpled
I just had the full hyst a while ago too and know it is a whopper of a surgery. I also cannot take steroids due to my medical history - mine is cushing's disease. I was already disabled when I got hit with this and it does seem overwhelming. I don't know how you can do it with kids and a job! Kudos to you! Feel free to dump away as we understand.
It is auto-immune as well, so if you have one, you tend to get others...
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Hi Rumpled,
Thanks for your reply. It really does help to communicate w/ people that get it. Although my family, friends, co-workers try, they just do not understand. I went back to neuro & after getting a CT scan to check my thymus-he says it looks good. I am encouraged by this news. I will continue w/ mestinon & supplement w/ prednisone, as needed. I will go back in May. We may explore IVIG. I will keep the faith & hope I will be fine. Thanks again for your encouraging words. I hope this reply finds you well in mind, body, and spirit.
Nancy Lee