Thread: Update on us
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Old 09-01-2006, 01:19 AM
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GinaMarie GinaMarie is offline
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Join Date: Aug 2006
Location: CA
Posts: 101
15 yr Member
GinaMarie GinaMarie is offline
Member
GinaMarie's Avatar
 
Join Date: Aug 2006
Location: CA
Posts: 101
15 yr Member
Arrow

Well Im home. We got a ride home from my mom. It was nice being able to see my mom and visit with her. She lives a few hours away from here. I called her last night and told her what happened and she said she would see if she could give us a ride home. She had to talk to my grandma because she was suppose to be making doc appts to take my grandma to.

NOW tomorrow will be crazy. I have to see if I can fit my walker (rollater) in the boys dads old car and I have P/T at 8 am, ortho appt to get a new AFO fitting at 11:30 am and then head to Stockton for Noah's final CCS appt at 1 PM and then I have to try to find a place to get me a loan.

I talked to the lady who has the van I want to buy and she still has it but only til this weekend. So I only have tomorrow to find a loan. IF its in the Lords will then it will work out. IF NOT... then it wont and the Lord will provide something else.

I found out yesterday that Dr. Gorlin (the doctor who discovered our syndrome/disease and it was named after) died on Tues. He had been fighting cancer for awhile. Reading an article on him, read he was first diagnosed with cancer 8 yrs ago. He helped discover over 100 syndromes and 6 were named after him. He will be greatly missed.

Well I need to get ready for bed. Maybe tomorrow if I find some time I will tell you about Noah's appts. Tho Wed. was kinda a waste.
__________________
GinaMarie - Basal Cell Carcinoma Nevus Syndrome (BCCNS) also known as Gorlin Syndrome, Multiple other stuff, Mother to 4 miracle boys.
Nathan - Adhd,
Caleb - Adhd,
Adam - BCCNS, Adhd, Chiari Malformation,PDD-NOS
Noah- BCCNS, Adhd, Chiari Malformation, Bronchial Stenosis, Asthma
Thank you Jesus!! He walks with us thru all of this because he will never leave us nor forsake us!! He is my BESTEST friend!!!
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