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Magnate
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Join Date: May 2007
Posts: 2,049
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Magnate
Join Date: May 2007
Posts: 2,049
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I think the best thing to do is read up on diabetic neuropathy. Diabetes is the most common cause of small fiber neuropathy, and there is a great deal written regarding it. It is always difficult to think, 'How could this happen to me and how could there be no way to fix it?' There is an emotional adjustment coming to terms with a chronic disease.
Small fiber neuropathy is not really treatable, unless the CAUSE is treatable. If your cause, is diabetes, which is the most likely reason for SFN in the population, treating (controlling) the diabetes is the logical course to follow. Diabetes is the main issue, PN is due to the diabetes.
Most of the studies done on PN are done on diabetic small fiber neuropathy, so there is a lot of information on it.
Many people on here, do not have diabetes, so that is where things get more complex and confusing when it comes to tests and treatments.
Many folks on the forum have different causes for their different types of PN.
While it is possible for you to have a separate cause for your PN, it is by far the most likely that the diabetes caused it. Pain management and symptom control is the only way they treat axonal small fiber neuropathy.
IVIG is reserved for those people with autoimmune etiology for their neuropathy, such as neuropathy secondary to autoimmune disease such as Sjogren's syndrome, or CIDP.
You may find it helpful to look for clinical studies on diabetic PN if you want to try something else other than symptom management. Of course, really research what you are getting into.
Other than the few who are receiving IVIG, most of us are getting symptom management and pain management. Another good area to concentrate on, is becoming knowledgeable about the options you have for management of the condition.
Getting good diabetic care and control is very important.
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