Quote:
Originally Posted by Cowcntry
I just want everyone to know yesterday the 25th I went to Shands hospital in Jacksonville Florida to the Neuropathy center. I was so dissapointed by my appointment. It was so discouraging. First of all, the doctor told me what me and my husband already knew. I have peripheral neuropathy caused by diabetes. He told us that to see a neurologist is a waste of time. He said I just need to concentrate on a pain management specialist and my PCP doctor. OK, what? Why would you not see someone that is a neurologist? I know for one, I am not going to stop seeing my neuro. Has anyone heard of such a thing?
thanks,
Michele  |
I think my neurologist pretty much has washed her hands of me as well. I also have DPN (small fiber). She is not my first neurologist either. I live in a small town in Upstate NY and there are few neurologists at all. I have seen neurologists in Burlington, VT but as you stated, they tell you what you already know. She suggested that if I wanted to come back that I could set up a time with her receptionist (giving me the option to bale). However, I made another appointment for 6 months as I do not want to be totally without a neuro.
The other posts are right on about controlling blood sugars. It may not rid you of the PN but it can keep it from progressing. My trouble currently is that I have extreme fatigue and did the sleep apnea test and was told that I do have it - great! I am going back tonight for another night with leads, cords and electrodes...and the CPAP which is the mask-like device that I will be sleeping with. I just hope it helps. I miss spending time with my family, having company for dinner, using my recumbent bike and being "normal"
You are not alone - this is a nasty disease. I try not to think of it as horrible because I know others have it a lot worse than I do.
Take care and good luck.
Cheryl