View Single Post
Old 03-26-2008, 02:32 PM
barb02's Avatar
barb02 barb02 is offline
Grand Magnate
 
Join Date: Jan 2008
Location: Illinois
Posts: 3,836
15 yr Member
barb02 barb02 is offline
Grand Magnate
barb02's Avatar
 
Join Date: Jan 2008
Location: Illinois
Posts: 3,836
15 yr Member
Default

Hi! I just received a call form a nurse in my neuro's office that I have tested positive for the presence of tysabri antibodies. I am pretty upset -- tyring to quit crying. They do want me to continue with 3 more infusions and then be retested because during the first 6 months of treatment they can be temporary and disappear. Of course they say they do not know what the long term side effects are of having antibodies and continuing treatment.

I do not know high my level was. Of course the doctor could not call me and tell me. I guess I will just go for my next infusion and see if I can find out more then. I have been thinking that my walking has improved due to tyssabri. Maybe I am just in a remission?
barb02 is offline