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Grand Magnate
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Join Date: Jan 2008
Location: Illinois
Posts: 3,836
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Grand Magnate
Join Date: Jan 2008
Location: Illinois
Posts: 3,836
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Hi! I just received a call form a nurse in my neuro's office that I have tested positive for the presence of tysabri antibodies. I am pretty upset -- tyring to quit crying. They do want me to continue with 3 more infusions and then be retested because during the first 6 months of treatment they can be temporary and disappear. Of course they say they do not know what the long term side effects are of having antibodies and continuing treatment.
I do not know high my level was. Of course the doctor could not call me and tell me. I guess I will just go for my next infusion and see if I can find out more then. I have been thinking that my walking has improved due to tyssabri. Maybe I am just in a remission?
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