I have a neuropathy and a myopathy, both likely related, likely hereditary, likely autosomal dominant and adult onset. My myopathy is non-specific, which means, as far as I know, it doesn't fit into any specific myopathic disease and is likely caused by my neuropathy...but from what I understand the analysis isn't complete. I mostly post on the PN forum, because I have a small fiber neuropathy pretty much everywhere that small fibers live. (And they do dwell every where).

I did the research that was needed to get myself a muscle biopsy and learned a heck of a lot about hereditary myopathies along the way (including an exhaustive genealogy that indicated I came from a line of folks that pass on some obscure autosomal dominant myopathy that comes with a small fiber neuropathy)....and I found the end of the internet. Anyway, hello.