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Member
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Join Date: Jan 2008
Location: Houston Texas
Posts: 222
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Member
Join Date: Jan 2008
Location: Houston Texas
Posts: 222
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Jumping from the MS board
OK. This may take a while....
At 17 I was dx with a rare form of colon cancer. After a resection of the colon I continued to have SEVERE diarreah and ulcerations in my mouth. At 20 I was dx wtih Crohn's disease in 1990.
In 2004 I began to have neurological sx. I had extreme fatigue but I also began to trip. Then began tingling, numbness, muscle spasms, short term memory loss, confusion (I put my shoes in the freezer), and the list goes on and on.
I was first dx with CIDP because EMG and SSEVP was abnormal but MRI was normal. A lesion appeared on my MRI in 2006. DX changed Transverse Myelitis w/possible MS because I continued to worsen. Later MRI showed brain lesions. DX was changed to MS.
I was not tested for Lyme because they could not access a vein to draw blood (all the IV steroids for Crohn's ate them). Two weeks ago they were able to get a vein using a handheld sonogram. They went ahead and tested for Lyme disease. It came back positive.
She feels that I have an extreme chronic case. I am starting the oral antibiotics and after a few weeks we will do IV antibiotics.
I am confused but excited that I do not have MS.
What can I expect after treatment?
Can I have hope that life will return to normal?
Thank you and I am looking forward to getting to know the board members.
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